The NHSI – Learning Disability Improvement Standards review is a national data collection, commissioned by NHS Improvement (NHSI) and run by the NHS Benchmarking Network (NHSBN). The data collection has been designed to fully understand the extent of Trust compliance with the recently published NHSI Learning Disability Improvement Standards and identify improvement opportunities.

The improvement standards reflect the strategic objectives and priorities described in national policies and programmes, in particular those arising from Transforming Care for People with Learning Disabilities Programme and the Learning Disabilities Mortality Review (LeDeR) programme. Compliance with these standards requires Trusts to assure themselves that they have the necessary structures, processes, workforce and skills to deliver the outcomes that people with learning disabilities, their families and carers, expect and deserve. It also demonstrates a commitment to sustainable quality improvement in developing services and pathways for people with learning disabilities. The standards review aims to collect data from a number of perspectives to understand the overall quality of care across learning disability services.


The scope of data collection will be the experience of care for people with learning disabilities throughout learning disability services.

All Acute, Community, Mental Health and Ambulance Trusts are included in the scope of the data collection, with an additional data collection for providers a specialist learning disability services.

Data collection

The data collection will comprise the following 3 elements: -

1. There will be an organisational level data collection, completed from the perspective of a nominated Executive Learning Disability Lead, which will collate data on policies, activity, the impact of the care delivered, service quality and outcomes.

2. A staff survey, completed from the staff perspective, this will be used to survey the workforce, training and skills available

3. A service user survey, completed from the patient perspective, this will be used to survey the quality of care received by people with learning disabilities, and overall patient experience. Please note Ambulance trusts and Children’s trusts are not required to complete the service user element of data collection.

Data collection took place from 17th September to 30th November 2018.


Latest news

Data collection for NHSI Learning Disability Improvement Standards project has now closed.

NHS Improvement announced the Improvement Standards project with a letter from Chief Executive Ian Dalton



For info and support email: nhsbn.nhsildsupport@nhs.net