The NHSE &I – Learning Disability Improvement Standards review is a national data collection, commissioned by NHS England and NHS Improvement (NHSE &I) and run by the NHS Benchmarking Network (NHSBN). The data collection has been designed to fully understand the extent of Trust compliance with the recently published NHSE &I Learning Disability Improvement Standards and identify improvement opportunities.

The improvement standards reflect the strategic objectives and priorities described in national policies and programmes, in particular those arising from Transforming care for people with learning disabilities – next steps and the Learning Disabilities Mortality Review (LeDeR) programme. Compliance with these standards requires Trusts to assure themselves that they have the necessary structures, processes, workforce and skills to deliver the outcomes that people with learning disabilities, their families and carers, expect and deserve. It also demonstrates a commitment to sustainable quality improvement in developing services and pathways for people with learning disabilities. The standards review aims to collect data from a number of perspectives to understand the overall quality of care across Learning Disability services.


  1. The scope of data collection will cover; Trust corporate arrangements for supporting people with intellectual disabilities, staff perceptions on services offered and the experience of care for people with learning disabilities.

  2. All Acute, Community, Mental Health Trusts, Ambulance Trusts and CICs are included in the scope of the data collection.

Data collection

The data collection will comprise the following 3 elements:

  1. There will be an organisational level data collection, completed for the Trust by a nominated Executive Learning Disability lead, which will collate data on policies, activity, the impact of the care delivered, service quality and outcomes.

  2. A staff survey, completed from the perspective of individual staff members, this will be used to survey the workforce, training and skills.

  3. A patient survey, this will be used to survey the quality of care received by people with learning disabilities, and overall patient experience. This year’s collection will be a paper format with an accompanied free post envelope for patients to send their responses back to NHSBN anonymously. Please note Ambulance trusts and Children’s trusts are not required to complete the service user element of data collection.

Further details on the project can be found here.


Latest news

Registration is open!

Registration for the 2019 NHSI Learning Disability Improvement Standards project is now open. Please register your organisation to participate by the 28th October 2019. Data collection will open on 18th November 2019.


For info and support email: nhsbn.nhsildsupport@nhs.net